Purpose

The investigators will explore barriers to improving self-efficacy, or the ability to feel in control of their disease, and medication adherence with text messaging through surveys and interviews with adolescents and adults with SCD cared for at the Vanderbilt Meharry Center of Excellence (VMCE) in Sickle Cell Disease (SCD). The investigators will identify preferences to improve and sustain adherence to daily medication through selection of investigator-proposed or patient-generated text messaging strategies. Finally, the investigators will fill in the literature gaps by describing barriers to self-efficacy and medication adherence among adults with SCD as well as adolescents with SCD who are transitioning to adult care.

Condition

Eligibility

Eligible Ages
Between 12 Years and 70 Years
Eligible Genders
All
Accepts Healthy Volunteers
No

Inclusion Criteria

  1. Receiving care at the VUMC/Matthew Walker clinic 2. Diagnosed with SCD, asthma, or both 3. Currently taking daily medications for SCD, such as hydroxyurea, asthma, or both 4. Having access to a mobile telephone and/or computer 5. Age 12-70 years

Exclusion Criteria

  1. Unable to perform interviews or surveys

Study Design

Phase
Study Type
Observational
Observational Model
Cohort
Time Perspective
Prospective

Arm Groups

ArmDescriptionAssigned Intervention
Asthma and/or Sickle Cell Anemia The investigators will examine patients with sickle cell disease, asthma, or both who are aged 12-70 years who take daily medications.
  • Other: Interviews and Surveys
    The investigators will perform semi-structured interviews and surveys on this cohort

More Details

Status
Active, not recruiting
Sponsor
Vanderbilt University

Study Contact

Notice

Study information shown on this site is derived from ClinicalTrials.gov (a public registry operated by the National Institutes of Health). The listing of studies provided is not certain to be all studies for which you might be eligible. Furthermore, study eligibility requirements can be difficult to understand and may change over time, so it is wise to speak with your medical care provider and individual research study teams when making decisions related to participation.